http://www.eurordis.org/specialised-social-services
 Therapeutic Recreation  Respite Care Services  Adapted Housing  Resource Centres |
What are Specialised Social Services?
When referring to Specialised Social Services, it is important to remember the different types of services that have been identified at EU level.
The services can be listed as:
The services can be listed as:
- Therapeutic Recreation Programmes (TRP)
- Respite Care Services (RCS)
- Adapted Housing (AH)
- Resource Centres (RC)
- Other habilitation services supporting People Living With Rare Diseases (PLWRD) in their daily life or in their complementary therapeutic procedures, increasing autonomy and quality of life of PLWRD.
Each tab above is dedicated to a type of Specialised Social Service, including a definition of the service, the list of services, a factsheet and case studies or guidelines.
Why are they needed?
Specialised Social Services are instrumental to the empowerment of PLWRD and improvement of their well-being and health. For people living with a rare, chronic and debilitating disease, care should not be restricted to medical and paramedical aspects, but should also take into account social support, inclusion and psychological or educational development. Therapeutic Recreation, Respite Care, Adapted Housing Services and Resource Centres are essential in providing this vital support to PLWRD. The patient and volunteer testimonies available in each section recount the importance and the significant outcomes of these services for patients, families and society at large.
Read our Paper "Rare Diseases: addressing the need for SSS and integration into social policies" to access complete information
What is the role of EURORDIS with respect to Specialised Social Services?
Currently EURORDIS is involved in the European Committee of Experts for Rare Diseases (EUCERD) Joint Action Working for Rare Diseases (2012-2015), as leader of the work package dedicated to Specialised Social Services and Integration of Rare Diseases into Social Policies and Services.
Within the framework of this project, EURORDIS is responsible for mapping the services available in Europe and promoting awareness-raising activities for the purpose of highlighting the need for these services. EURORDIS will also address the issues concerning the training of the staff/volunteers working at these services.
For a complete insight into the need for Specialised Social Services and on the work developed under the EUCERD Joint Action, readEURORDIS Paper "Rare Diseases: addressing the need for SSS and integration into social policies".
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