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Wednesday 28 November 2012

N.O.R.D FINANCIAL AND MEDICATION ASSISTANCE RESOURCES

http://www.rarediseases.org/rare-disease-information/resources-tools/financial-med-assistance#free-or-reduced-cost-medical-care


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FINANCIAL AND MEDICATION ASSISTANCE RESOURCES

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MEDICATION ASSISTANCE RESOURCES

*If you can not find a patient assistance program for your medication, try contacting the manufacturer of the drug for possible program opportunities or financial assistance.
NORD’s Patient Assistance Programs help patients obtain life-saving or life-sustaining medication they could not otherwise afford.
NeedyMeds is a 501(c)(3) nonprofit with the mission of helping people who cannot afford medicine or health care costs. The information at NeedyMeds is available anonymously and free of charge.
RxAssist offers a comprehensive database of patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need. Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine.
The Abigail Alliance is committed to helping create wider access to developmental cancer drugs and other drugs for serious life-threatening illnesses. The Alliance is promoting creative ways of increasing expanded access and compassionate use programs and working to help promote creative ideas to get promising new drugs to the market sooner.
Care Connect USA has assembled a free list of family relief hotlines for financial assistance in critical categories. Some of these hotlines are government agencies, and some are privately administered. All have met there standards of practice, and are monitored for continued effectiveness.
Edmund Hayes provides a Newsletter, Blog and Web Page designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician. The list contains the name and telephone numbers of companies that have indigent programs in place.
Healing the Children works to heal children with burn injuries, cleft palates and other deformities whose families don't have access to or cannot afford treatment.
The HealthWell Foundation is a 501(c)(3) non-profit organization established in 2003 that is committed to addressing the needs of individuals with insurance who cannot afford their copayments, coinsurance, and premiums for important medical treatments.
Hill-Burton Free and Reduced Cost Health Care provides a reasonable volume of services to persons unable to pay for hospitals, nursing homes and other health facilities, and to make their services available to all persons residing in the facility’s area.
The National Alliance on Mental Illness (NAMI) compiled a list of free or low-cost mental health medications provided by pharmaceutical companies.
The National Human Genome Research Institute provides some resources for finding information on financial aid for medical treatment, although it is not authorized to provide routine medical assistance or treatment funds.
The Patient Advocate Foundation (PAF) Co-Pay Relief Program (CPR) currently provides direct financial support to insured patients, including Medicare Part D beneficiaries, who must financially and medically qualify to access pharmaceutical co-payment assistance.
The Patient Access Network (PAN) Foundation was founded in October 2004 as a solution to help the underinsured access the health care they so desperately need to continue living a relatively normal and productive lifestyle.
Patient Services, Inc. (PSI) provides peace of mind to patients living with specific chronic illnesses by: locating health insurance in all 50 states, subsidizing the cost of health insurance premiums, providing pharmacy and treatment co-payment assistance, assisting with Medicare Part D Co-insurance, and helping with advocacy for Social Security Disability.

EDUCATION RESOURCES

The College Board is a not-for-profit membership association whose mission is to connect students to college success and opportunity. The College Board is committed to the principles of excellence and equity, and that commitment is embodied in all of its programs, services, activities and concerns.
Educational Equity Center at AED develops programs and materials that promote bias-free learning in school and after school. We provide professional development, consulting services, and community partnerships.
Federal Student Aid, an office of the U.S. Department of Education, plays a central and essential role in America's postsecondary education community. Our core mission is to ensure that all eligible individuals benefit from federal financial assistance—grants, loans and work-study programs—for education beyond high school.
FinAid was established in the fall of 1994 as a public service. This site has grown into the most comprehensive source of student financial aid information, advice and tools -- on or off the web.
Learning Disabilities Association of America creates opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.
The National Center for Learning Disabilities (NCLD) works to ensure that the nation's 15 million children, adolescents, and adults with learning disabilities have every opportunity to succeed in school, work, and life.

FREE OR REDUCED COST MEDICAL CARE

The National Association of Free Clinics (NAFC) is the only nonprofit 501c(3) organization whose mission is solely focused on the issues and needs of the more than 1,200 free clinics and the people they serve in the United States.
Shriners Hospitals for Children® is a health care system of 22 hospitals dedicated to improving the lives of children by providing pediatric specialty care, innovative research, and outstanding teaching programs for medical professionals. Children up to age 18 with orthopaedic conditions, burns, spinal cord injuries, and cleft lip and palate are eligible for care and receive all services in a family-centered environment, regardless of the patients’ ability to pay.
St. Jude Children’s Research Hospital’s mission is to advance cures, and means of prevention, for pediatric catastrophic diseases through research and treatment. No child is denied treatment based on race, religion or a family's ability to pay.
Texas Scottish Rite Hospital for Children is a world leader in the treatment of pediatric orthopedic conditions. We strive to improve the care of children worldwide through innovative research and teaching programs, training physicians from around the world.

CANCER FINANCIAL SUPPORT

The Cancer Financial Assistance Coalition helps cancer patients experience better health and well-being by limiting financial challenges, through: facilitating communication and collaboration among member organizations; educating patients and providers about existing resources and linking to other organizations that can disseminate information about the collective resources of the member organizations; advocating on behalf of cancer patients who continue to bear financial burdens associated with the costs of cancer treatment and care.
Cancer Care is an organization that provides professional support services to anyone affected by cancer. CancerCare programs—including counseling and support groups, education, financial assistance and practical help—are provided by professional oncology social workers and are completely free of charge.
Lance Armstrong Foundation works to identify the issues faced by cancer survivors in order to comprehensively improve quality of life for members of the global cancer community.
The Leukemia & Lymphoma Society Co-Pay Assistance Program helps you pay your insurance premiums and meet co-pay obligations. We'll also help you find additional sources of financial help.
The National Cancer Institute is part of the National Institutes of Health, and supports and coordinates research projects conducted by universities, hospitals, research foundations, and businesses throughout this country and abroad through research grants and cooperative agreements. They also collect and disseminate information on cancer.
The American Cancer Society’s Road to Recovery Program provides free transportation for cancer patients. Cancer patients receiving treatment at a nearby hospital or medical facility can get free transportation to and from their treatment site. The American Cancer Society’s Road to Recovery program is a free service for cancer patients who lack transportation.
Cancer Legal Resource Center is a national, joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles. The CLRC provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, health care professionals, employers, and others coping with cancer.

TRAVEL ASSISTANCE AND RECREATION RESOURCES

The National Patient Travel HELPLINE provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.
Patient AirLift Services arranges free air transportation based on need to individuals requiring medical care and for other humanitarian purposes.
TSA Cares is a helpline to assist travelers with disabilities and medical conditions. TSA recommends that passengers call 72 hours ahead of travel to for information about what to expect during screening.
Double "H" Hole in the Woods Ranch provides specialized programs and year-round support for children and their families dealing with life-threatening illnesses.
New Directions for people with disabilities, inc. is a 501(c)(3) non-profit organization providing high quality local, national, and international travel vacations and holiday programs for people with mild to moderate developmental disabilities.
The Association of Hole in the Wall Camps is an international family of camps and programs that provide life-changing experiences to children with serious medical conditions, always free of charge.  Their goal is to extend these experiences to as many children as possible around the world.
Hospitality Homes provides temporary housing in volunteer host homes and other donated accommodations for families and friends of patients seeking care at Boston-area medical centers.
The National Association of Hospital Hospitality Houses supports homes that help and heal to be more effective in their service to patients and families.